Announcing a Special Fundraiser till the end of 2023

I have a grandniece named Daizee who will be three in May.  Daizee is a happy girl but has limitations.  Daizee is one of 12 kids in Canada, 7 are girls and she is one  of 195 registered in the world that are diagnosed with Malan Syndrome.

The Malan Syndrome Foundation calls their kids Sunflowers.

Our Sunflower is Daizee. She is amazing, her determination, strength and willingness to try and try again is so courageous and unwavering. She has a dedicated family who work with her constantly. Daizee loves to go to Music and Mingle with Rachel and Early on.  

Last year she learned to walk with a walker. Now she is even trying to run.  Daizee was just fitted with braces to keep her feet straight and a back brace to straighten the back.  Her muscle tone is getting stronger and she even stood up on her own for a few seconds.   She can stand when holding onto something and can side shuffle to get something she wants.   Daizee is non verbal but is working with a speech therapist however she can say "Hey Google" clearly.  She also uses 5 signs to communicate.

Why am I fundraising? It is very expensive to do research, develop equipment, and therapies for children with Malan Syndrome.  That is why I am giving 10% of all items sold that have flower and foliage images on them split between Malan Syndrome Foundation and the Children's Hospital of Eastern Ontario, whether online or in person sales. Also if you want to make a cash donation e-transfer to grenier1928@gmail.com.

https://www.etsy.com/ca/shop/ByThreeSistersCanada

https://incredibledesignsbythreesisterscanada.com

I have been in my studio designing hats, mugs, cards, backpacks etc. with sunflowers and daisies on them to make this a great year. Visit often so you can see the new products daily or weekly.  Like my shop or sign up for updates. Share this blog with your friends and family. 

I look forward to making a donation with Daizee and her family at the end of the year with your help.  Those that have ordered will be thanked in the letter accompanying the donation.

CA

Want more information about Malan Syndrome Foundation go to https://www.malansyndrome.org/

 

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