News

  • Announcing a Special Fundraiser till the end of 2023

    by Carol-Anne Grenier
    I have a grandniece named Daizee who will be three in May. Daizee is a happy girl but has limitations. Daizee is one of 12 kids in Canada, 7 are girls and she is one of 195 registered in the world that are diagnosed with Malan Syndrome. The Malan Syndrome Foundation calls their kids Sunflowers. Our Sunflower is Daizee.
    Posted in canada, cheo, fundraiser, Malan Syndrome, rare, support